Sunday, October 26, 2008

Boy grows second skeleton

Shane Terry is a 4-year-old little boy in Watertown, NY who has one of only 600 confirmed cases in the world of fibrodysplasia ossificans progressiva, or FOP, a disease which causes bone to form in muscles, tendons, ligaments and other connective tissue.

“When he was first diagnosed, I wanted to keep him in a bubble,” Kimberly A. Hayes, Shane’s mother, told the newspaper. “Through an FOP group online, I learned that I need to let him be as much of a kid as I can. I have to look at every situation to see which would be safest for Shane.”

The life expectancy of this disease is only 41 as there is no known cure.

Read the whole article here or visit the FOP website here.

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